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Staying Positive

Sarah had a few seizures yesterday. I captured one on video to show her doctors. I felt my heart drop when I saw this. We were told that some kids will have seizures for a while after the surgery, but since I am not a patient person I am stressing over this. They are going to give her a loading dose of steroids. Maybe if the irritated areas on the right side of her brain have a chance to calm down they will stay calm since there is no disease on that side to keep irritating them. I think that is the plan.

We are trying to stay on the positive with how miraculous Sarah’s recovery has been so far. She was put back on solid foods last night. They clamped off her brain drain (that is what i am calling it) yesterday and she will get a CT scan this morning. If everything looks good they will pull it out and she will be able to move around a bit more. I am going to go over and get some pictures of her today to post. Dr. Franz told me yesterday that he would have never thought she would be able to speak so well following this surgery. At her age, all the speech (sensorineural and motor) comes from the left side of the brain.

I am trying to update more often, but until Kim and I get some type of schedule figured out there isn’t much time.  I will try to post more tonight or tomorrow morning.

This entry was posted on 16. July 2008 at 14:49 and is filed under All About Sarah. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response or trackback from your own site.

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9 Responses to “Staying Positive”

  1. christy_swensen says:
    16. July 2008 at 17:37

    I will keep your family and Sarah in my prayers….oh how my heart goes out to you all. I am a youth leader at my church and we would love to volunteer free babysitting if it would help you and your wife in anyway. Please email me christy_swensen@hotmail.com

    your sister in Christ Jesus,
    Christy Swensen

  2. Kelly O'Melia says:
    16. July 2008 at 18:58

    I will be praying the seizures are just from temporary irritation from the surgery. I have been following your blog for the past couple of days after realizing that our daughters had their hemispherectomies two days apart from each other.

    I will continue to check in and pray for the very best outcome.

    Kelly O’Melia
    GabrielleFaith.com

  3. sara says:
    17. July 2008 at 02:27

    Hi. My name is Sara and i’m from the Cleveland area. I went to UCA cheer camp with the cheerleaders from your town. They told us about Sarah and it reminded me of a similar story that happend to a little girl from my home town at the end of this school year. Unfortunatly she didn’t make it. I was interested in getting one of the shirts to support Sarah but I don’t know where to get it. Some of the other girls on my squad wanted one too. I’m happy to hear that sarah is doing well and I hope she keeps getting better!
    - Sara

  4. Paige says:
    17. July 2008 at 03:23

    I have been thinking about you guys. Sorry to hear about the seizures. But I know that Sarah will be romping and stomping in no time. Please let me know if there is anything I can do. Sending positive thoughts your way.

    Love,
    The Tracy’s
    Paige, Mitch, Addie Kaye and Lillie Dale

  5. Nickie Stefanik says:
    17. July 2008 at 03:58

    sarah,
    i hope you are feeling better. i am a friend of jessie hall’s. i hope that you get to have fun soon. i will pray for you to get better soon.
    nickie stefanik
    (8 years old, Baltimore, MD)

  6. Lainey says:
    17. July 2008 at 20:43

    Hello! My name is Lainey and I am an 8th grader at Aledo Middle School. I have been so inspired by Jessie’s story. I was reading Jessie’s blog and saw your web page posted. I clicked it and began to read your story. I guess I didn’t realize how many precious lives are being affected by this disease. Although I don’t know neither Jessie or Sarah, I am keeping them in my thoughts and prayers. I am telling their story to my family and friends with hope that they will pray for these girls. I know that these two girls have been in millions of thoughts and prayers, and that everything will fall into God’s hands and be OKAY. God Bless Sarah, Jessie, and the hundreds of families this disease is affecting. GOD WILL TAKE CARE OF THEM.

    Love,
    Lainey

  7. marilyn says:
    17. July 2008 at 21:25

    just wanted you to know i attend crosspointe coc and everyone here is praying for sarah and the family hopefully the seizure are only temporary.looking forward to seeing more pictures that really shoe how God move on situations like this.give sarah a huf and let her know were all thinking of her.
    strength and prayers
    marilyn

  8. Pat Baker says:
    31. July 2008 at 15:42

    Hi,

    We are friends of Sarah’s grandparents, Jeff and Loretta. Just wanted you to know that our church family has sent this newest development through our prayer chain and we will all be praying for Sarah Friday.

    In Christ,

    Pat and Jim

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