Sarah had her EEG this morning. I was a little apprehensive about her having it. Although it gives indications if there is seizure activity, they try to induce seizures to see. I thought since she only had the two that it was not a good idea to voluntarily irritate her brain. They skipped the strobing light part and she did fine. She did have a little coughing thing during the procedure. She has had that for the last couple of weeks. It is just like the cough she had after her surgery that was attributed to some kind of brain stem thing. It went away, but seems to have come back. Of course it could be that she has something in her airway making her cough a lot.

The nurse practitioner called us a few minutes ago and told us that Dr. Franz read the EEG results and sees no abnormal activity on her right side (the good side). That has given us some relief, but doesn’t go very far to explain why she had those two seizures. We have gone a little overboard because we are so scared. We have stopped letting her watch tv in a dark room and Kim has stopped doing her e-stim until we see Dr. Franz on Thursday. We felt that giving her shock treatment might be a bad idea right now no matter how low the voltage.

I find myself just sitting staring at her face watching it so closely that I start to see things that aren’t there. We were just starting to get complacent with Sarah. We just started to feel like we didn’t need to watch her all the time, but I guess we may never get to that point again.