27. January 2009 by admin.

Well Sarah hasn’t had any seizures yet, so we are now in a waiting game. She has been taken off all of her seizure meds. Hopefully for good. Kim and I decided that if she doesn’t have any by Friday we will bring her home to wait for them. She is having a swallow study done today just to rule out any swallowing issues that would cause her to vomit and cough like she has been. The doctors are sure that isn’t the problem but they need to rule it out.

I got to spend last evening at the pediatrician until 10:30pm with Logan who has strep throat. Ava seems to be mostly over her cold. Just a residual runny nose.

Posted in All About Sarah | Print | 1 Comment »

27. January 2009 by admin.

The plan for Sarah was given to us today. Dr. Lee still needs to capture a seizure on an EEG. They have stopped all of Sarah’s seizure medications and will wait for the seizures to start again. She will stay in the hospital for a few days and if we don’t see any by the end of the week we will probably take her home and wait. I guess everything that they have captured on EEG, PET, or MEG scans have been different and not originating in the same place. So her eye twitching, coughing, arm/shoulder trembling doesn’t seem to all start at the same place. I know it is confusing. I guess the best way I can say it is that all the data they have collected on her is inconclusive to pinpoint where possible connections may or may not be. They need to get a few full blown seizures on an EEG. After that there will be decisions on what will be done (Surgery).

Bottom line is that she will probably not have surgery this week. The steroids they gave her have held the seizures at bay so she had a good weekend. We have to wait for those to wear off too. We hate that her life is on hold again, but we would rather get the right answers over just fast answers.

Well besides what is going on with Sarah, her brother and sister are both sick too. There’s nothing like a pile on.

Posted in All About Sarah | Print | 1 Comment »