The plan for Sarah was given to us today. Dr. Lee still needs to capture a seizure on an EEG. They have stopped all of Sarah’s seizure medications and will wait for the seizures to start again. She will stay in the hospital for a few days and if we don’t see any by the end of the week we will probably take her home and wait. I guess everything that they have captured on EEG, PET, or MEG scans have been different and not originating in the same place. So her eye twitching, coughing, arm/shoulder trembling doesn’t seem to all start at the same place. I know it is confusing. I guess the best way I can say it is that all the data they have collected on her is inconclusive to pinpoint where possible connections may or may not be. They need to get a few full blown seizures on an EEG. After that there will be decisions on what will be done (Surgery).

Bottom line is that she will probably not have surgery this week. The steroids they gave her have held the seizures at bay so she had a good weekend. We have to wait for those to wear off too. We hate that her life is on hold again, but we would rather get the right answers over just fast answers.

Well besides what is going on with Sarah, her brother and sister are both sick too. There’s nothing like a pile on.