27. February 2009 by admin.

One of the perks of working at the hospital is that I get to run into some of the neurologists that treated Sarah. They always want to know how she is doing. I ran into one of the attending and one of the fellow neurologists today. They both asked me how she was doing straight away.

Sarah had a good day today helping her mom around the house (at least that is what she said she did). She hasn’t vomited today, so that is two days in a row. She says that her belly feels fine. She is starting to really enjoy playing the Wii and she is improving all the time.

Sarah playing the Wii

Ava standing on Miley’s bone

She got it

Miley giving me the skunk eye

 
Miley being lazy

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26. February 2009 by admin.

Sarah got her stitches out yesterday, and then went straight to therapy. She is healing fine and had a good day yesterday. She played her wii last night before she went to bed. I went in to check on her before she went to sleep and all she had to say was “I am tired”.

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23. February 2009 by admin.

Sarah is resting well at home. She had done pretty well since coming home and is becoming more active every day. She has only vomited once since being home, but that was our fault for letting her eat too much when she had a friend over. She still has to watch eating too much at one sitting. I am not sure how long it will take for her digestive system to get back to normal.

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21. February 2009 by admin.

I put together a little something to show everyone how much of Sarah’s left hemisphere was removed. Click here to watch

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21. February 2009 by admin.

Sarah is doing well at home. She slept most of the day yesterday after getting home. She did wake me up a couple times last night. One time was at 3:00am to tell me that she was hungry. I was so delirious that I got up and gave her some cereal.

Now that she is at home I catch myself staring at her waiting for a seizure. It sounds silly, but I know I won’t be able to relax about that for a long time.

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20. February 2009 by admin.

Sarah was discharged after lunch today. She is doing well except for her slow digestive mobility, but it should get back to normal in time. Kim had to make a slew of follow up appointments for the next couple of months, so Sarah will be busy. She will be back in therapy next week and hopefully back in school in a couple of weeks.

She had some therapy right before she left today so she was really tired. She told us that she wanted a Big Mac, so I am sure her mom made that happen on the way home.

May the Lord keep her from coming back except to visit.

In the car going home

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20. February 2009 by admin.

Well Sarah had a great day. No vomiting and eating everything in sight. If she does well tomorrow morning she will most likely be coming home tomorrow afternoon. They did some type of barium swallow study on her and found out that her digestion has been slowed. It is not unheard of with people who have went through what she has and it explains the vomiting. When we get more details on the study results I will try to explain it better.

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18. February 2009 by admin.

Sarah has been up and down the last couple of days. She has gone hours feeling good and is alert, and then she will start to feel sick again and vomit. Today she has been more up than down, but she has vomited a couple of times. She had physical therapy today and did well, but it takes it out of her so she has a big nap afterwards. 

One of the times she vomited and then wanted to eat afterwards. I don’t like that because that is what was happening when seizures were causing her vomiting.

Sarah eating her cinnamon roll from McDonald’s

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17. February 2009 by admin.

Well the big room on the neuro floor opened up today. The staff gaves us first dibs at it. We have a lot more room to move around now.

As far as Sarah going home in the next couple of days, I wouldn’t count on it. They can’t really send her home until she is over the vomiting and off all IV fluids and meds. Dr. Mangano came in today and told me that her CT scan looked great and she looks great. He said that by her scan there is no sign of excessive intracranial pressure, so he is not really sure why she is vomiting so much. There is some air still in her skull so that will cause headaches until her body removes it.

Sarah woke up this morning in a good mood. She was hungry and ate some breakfast. She couldn’t eat much due to her stomach skrinking. She went to physical therapy today down in the gym. When she came back she was completely exhausted and took a three hour nap. After that she ate some lunch, but vomited about 3:30pm. That was the first time today. She vomited four times yesterday, so it seems to be decreasing by the day. Hopefully whatever it is will go away. They are confident that none of her issues are seizure related. I have seen no signs of anything that would make me think seizure. She is still on IV fluids until she can hold all of her food down for a day.

We will just keep praying.

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16. February 2009 by admin.

 Sarah started out the day like the last few with vomiting, upset stomach, and just wanting to lay in bed. She took an nap this afternoon and seemed to be a little better after that. She wanted some macaroni and cheese so I ordered some for her. She ate until she was full. It didn’t take long considering how much her stomach has shrunk. She ate about two hours ago and hasn’t vomited yet, so I am hopeful that she will get better from here. Of course it could be the round of steroids they gave her early this morning. I think they are trying to figure out what is making her so sick. It could be the fluid filling in the open space in her head. It could be some of the medications, or it could be some kind of stomach bug. There is not much proof of it being a stomach bug.

I am starting to doubt her getting to go home this week (maybe the end of the week). I think they would have to wait for this round of steroids to wear off to see if it is masking a problem. Hopefully she won’t need a shunt for fluid problems.

She played a game and did some coloring with me, so she is starting to “wake up” a little.

I tried to get her to smile, but she wasn’t in the mood yet

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