It’s been a while

 I know it has been a while since the last update. SORRY. Sarah had a great summer.

First I will go over the doctor/therapy stuff.  Her EEG she had (I think I wrote about it on the last update) looked good. At least that is what we are told. I guess the bad side of her brain is still firing off but we have seen no indications of seizures so praise the Lord for that. Sarah had a neuropsych test done to see where she is at mentally. She has shown much improvement since her last one. She also took a test during her speech therapy session. She scored low average for her age group which is way down from where she was before she got sick, but improved over where she was at after her surgery. Her therapists want her to cut back to once a week. They say that she is through the surgical rehab part of her therapy and will be just working on long term therapy. She does get some therapy at school, and we will work with her more at home too. She is also getting a new leg brace that is smaller. It will stop right about the ankle.

Well we had a meeting last week with what seemed like the entire staff at her school. We discussed in detail what Sarah is going to need for this school year. We described where she is at physically and mentally. Some of the people had yet to meet her since she is in a new school this year. She won’t have a full time aid at her side all the time this year, but there is a good support system in place for her. Our school district has been great making sure Sarah is getting all the help she needs. She is riding the school bus this year. Kim was a little nervous the first day so she followed the bus all the way to school, but they have a teacher waiting to assist her with getting off the bus. Her friend Marissa has been really great with helping her.

Sarah started cheerleading again. She had her first game today up in Waynesville (Madison won 30-0). She is doing what she can with the cheers, but sometimes gets too lazy with using her bad arm.


Sarah’s eighth birthday party (not at the hospital, yeah)

 
More birthday

 
Sarah with her friends Marissa and Abbey

 
We went to a butterfly festival (don’t ask)

 
Kim with the girls


In a firetruck with Marissa

3 Responses to “It’s been a while”

  1. Chaplain Elizabeth Newman says:

    It is, as always, great to see Sarah doing so well. She is a special little girl and God has blessed us all, by letting us know her and your entire family.

    My prayers are with you all for Sarah’s complete recovery and your family’s continued strength to endure.

    Love in Christ,
    Chaplain Elizabeth Newman
    Knoxville, Tennessee

  2. Hua says:

    Hey,

    I am glad to read that Sarah has improved since her last test and that she is cheering again. It looks like you guys had a great weekend from your pictures.

    I’m Hua, the Director of Wellsphere’s HealthBlogger Network. I’ve been searching the web for quality health blogs and am thrilled that I found yours. There is so much information here for people seeking to learn about brain health. Wellsphere visitors find relevant content and answers to their questions in one place, without having to wade through hundreds of search engine results to find what they want. We provide the platform that allows over 6 million users a month to connect, network, and find quality information.

    I think your blog would be a really great addition to the Brain Health Community. I invite you to join and find more information about us at http://www.wellsphere.com/health-blogger.

    Thanks for all the hard work you put into this! Feel free to email me if you have any questions.

    Best,
    Hua
    Director of Blogger Networks
    hua [at] Wellsphere [dot] com

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