Check up goes well

29. October 2009 by admin.

Sarah had another follow up appointment with her neurosurgeon and he said everything looks great. She got a new brace for her leg. It is lower profile, but it lacks a hinge for her ankle which I believe is a step backwards. She is outgrowing the other brace, but it seems to give her move mobility. She has been out of therapy for a while, but she will return next year when our insurance kicks back in. She does get some therapy at school still, and she is going to school full time and doing most of the same work as the rest of the class, but she sometimes doesn’t do as much of it.

We finally got some training wheels put on her bike. She is not up to Jesse’s level of riding without them yet. The first day she did a couple miles on her bike. Of course after that she was spent for the rest of the day. Kim wrapped her hand up around the handle bar and we had a little strap put on her right pedal to keep her foot on. She was so excited to get on her bike again.

Sarah is 3/4 of a year out of surgery.  She has been seizure free since her last surgery (I can’t knock on enough wood for that statement). We are really looking forward to the anniversary of her last surgery. One year without seizures will be a great milestone for us, although I don’t think I will ever be comfortable enough to not worry. I still find myself looking at Sarah like I am waiting for it to happen. A couple weeks ago she caught me doing it and knew what I was doing. She immediately told me to stop looking at her like that.

We went to a meeting at her school last week to discuss her individualized education plan. I heard something that stuck with me. Sarah has been saying things like “I used to be able to do that”.  I never knew how much she remembered about how things were before she got sick. I guess it was more than I thought. It really troubled me to hear that.  It is the same reason I have trouble looking at old home videos. I guess I don’t like being reminded what was taken away from her.

 Sorry there is so much time between posts. I just want to make sure there is something other than “Sarah went to school, came home ate dinner, played, and went to bed”.

Sarah is proud of the pumpkin she picked out

 
These two are hard to please. It has to be just right

Get comfortable, it is a long ride

I couldn’t resist this picture. He is the coolest bull around

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