4. January 2009 by admin.

The Cincinnati Enquirer came to our house, shot some video, and did a story about Sarah. They interviewed her neurologist Dr. Franz and her surgeon Dr. Mangano. If you would like to see it click here . I am still trying to get time to edit all of our Christmas video and post something. She is doing fine and has been doing some great work in therapy lately.

Posted in All About Sarah | Print | 1 Comment »

25. December 2008 by admin.

Sarah is having a good christmas. She is feeling good and got plenty of toys (spoiled). I got a calls and emails last night about Sarah’s name came up on a prayer chain. Family members were contacting me asking if everything was ok. I am not sure why. She is doing well and in a good mood. Most likely people were just trying to make sure she is still getting prayed for.

We did get some bad news today. Sarah’s Great Grandfather passed away today.

We hope that everyone has a good Christmas.

Posted in All About Sarah | Print | 1 Comment »

18. December 2008 by admin.

We had the pleasure of watching Sarah in her class Christmas performance. She did well, but was really tired afterward. I am going to try and get the video edited and posted soon. She has had to skip some therapy due to weather, but she is doing well. We have seen no more seizures. Hopefully the Lord will grant us a good Christmas season and keep those away.

Thank you to everyone who continue to pray for her.

Posted in All About Sarah | Print | No Comments »

8. December 2008 by admin.

Sarah has caught herself a little cold so we kept her home from school today. We feel we have to be extra cautious now when she gets sick. This is the first time she has been sick since her surgery so we are not sure what to expect. We were always told by the doctors that seizure activity can increase when kids get sick, but since she is not supposed to be having any more seizures we are hopeful that she will come through this fine.

Posted in All About Sarah | Print | 1 Comment »

29. November 2008 by admin.

We had the kids pictures taken for our Christmas cards today. Let me add a plug for Lenos Photography. Doug was great with the kids. It went much smoother than I expected. Ava took a few minutes to get used to the surroundings, but she did fine. We were a little worried about all the flashes Sarah was going to be exposed to but she came through ok. We noticed when viewing some of the pictures that Sarah has lost a lot of the steroid weight in her face and neck. She is starting to look like her old self again.

 We haven’t seen any more seizures (praise God). She is spending the night at her Grandmother’s house tonight.

Click here to see the video of Sarah jumping.

Posted in All About Sarah | Print | 2 Comments »

27. November 2008 by admin.

We haven’t seen anymore seizures. We are praising God for that. Sarah has been doing really good. Next week she starts going to school full days. She will still be off on therapy days, and she is getting some therapy at school too.

I went to pick her up the other day from school and she showed me a new trick she can do. She was jumping up and down. I will try to get it on video and post it soon.

We are off to Nana and Grandpa’s for Thanksgiving tomorrow. Hopefully it won’t be too much stimulation for Sarah.

 Thanks to everyone for there continued prayer and support for Sarah and the rest of us.

Posted in All About Sarah | Print | 1 Comment »

22. November 2008 by admin.

We haven’t seen anymore seizures, so we are praising God for that. Dr. Franz’s nurse practitioner called and said that they think it is something that will pass, but we are not exactly sure what caused the seizures.

In other Sarah news, we are letting her sleep in the top bunk of her bunkbeds. She loves it. Now she wants to go in there during the day and watch movies. It still makes me nervous. I tell her about a hundred times before bed not to try and get down herself. She hasn’t tried yet, and hopefully she never will.

Posted in All About Sarah | Print | No Comments »

20. November 2008 by admin.

Dr. Franz looked at Sarah’s PET scan last evening and then sent me an email telling me that everything looks good. That doesn’t totally explain the four seizures that she has had. I am going to try and meet with him soon to discuss in detail.

Posted in All About Sarah | Print | No Comments »

19. November 2008 by admin.

Not a happy update. Sarah Had another seizure on Monday morning at school and one today in the waiting room before her PET scan. When we have the results of the scan I will post them. Please pray that this is just part of her healing and not anything permanent. That is four seizures in the last nine days. I wish I could put a positive spin on this, but I can’t find the words to do it.

Posted in All About Sarah | Print | No Comments »

13. November 2008 by admin.

Sarah was seen by Dr. Franz today. We discussed everything that has happened this week and he seemed a little skeptical about the seizures. The EEG showed no seizure activity on her good side and the activity on the disconnected side is calming down which indicates that it is burning itself out. He still wants to have a PET scan done which we will be doing next week. That should give us some answers. He suspects that it is just part of the healing process and it may have been something from her brain stem like the cough. It would be a seizure but not the same kind that she had in the past. If it is just that, it would not be something that she would have to deal with the rest of her life. It is just part of the healing of her brain. He reminded us that she is just a couple of months out of a major brain surgery and there will be some ebb and flow to her recovery. Please keep praying.

Posted in All About Sarah | Print | 3 Comments »